I keep getting appointments and then a few weeks beforehand they are cancelled. What is going on? From initially supposed to have been seen on the 7th July, my next appointment is now towards the end of September. Im in pain and fed up. I feel quite forgotten about and tired of it all.

It has been almost a year since I had my experience with this hospital, and I’m still highly disappointed in the way I was treated or not treated as the case may be! After spending years in pain, I was relieved to finally have an appointment at a hospital that was seemingly the top in its field and from reading reviews seemed to have doctors who cared and would help. For my appointment I was seen by a registrar, who was lovely yes, but didn’t have my results from my previous hospital, and seemingly seemed like my pain was just pain and seemed happy to write it off as fibromyalgia, until the consultant came in and decided to do bloods, x-rays and an MRI. Now, as I left the appointment I was told I would hear from them within 2-3 month for a follow up about my results. I heard nothing, until I received a letter with two or three sentences telling me the results of my MRI. That was it, nothing else. No appointment, no official sign off, nothing. I had to contact the hospital to receive the rest of my results, because I had no idea what was in them otherwise. Obviously my results weren’t interesting enough to follow up with, because of zero appointment and I was offered no solutions to my pain a part from what was talked about within the initial appointment! I wasn’t expecting special treatment, but I was hoping for doctors that would dig a little deeper and not stop or completely ignore me when my test results didn’t show what they wanted. My pain may not be as debilitating as some, but it’s even worse a year on and I understand doctors can only do so much, but a hospital that is touted as being one of the leading hospitals in rheumatology, I thought they might have had more of an interest in helping someone and getting to the bottom of it. Instead, I wasn’t even given a follow up appointment and am left to deal with pain that is only getting worse.